Golfing marathon for baby with rare blood condition
A fund-raising day for an Alnwick baby with an extremely rare blood condition is taking place this Saturday.
Evie Campbell has to undergo a blood transfusion every five months since she was diagnosed with Diamond-Blackfan anaemia (DBA) at the age of eight weeks.
The condition, caused by a failure in the bone marrow and characterised by an inability to produce red blood cells, affects only around 125 people in the UK. It requires intensive therapy and has no known cure.
Evie’s dad Richie, a member of Alnmouth Village Golf Club, is taking on a marathon golf challenge to raise awareness and funds for DBA-UK, the charity which supports those with the condition.
The 30-year-old joiner, along with nine other members and close friends, will be teeing off at 4am on Saturday, for a 1,000 holes-in-one-day challenge.
The day will also feature a coffee morning from 10am to 1pm, a bouncy castle and stalls.
The National Blood Service will also be in attendance, allowing people to learn more or sign up to be a blood donor, as Evie is life-dependent on blood.
A barbecue and music event are taking place in the evening, although this is strictly ticket-only and there are very few remaining.
Evie’s mum, Rebecca Hole, said: “The golfers are looking forward to it but they are nervous about the challenge and hoping the weather is good.
“The website (www.eviecampbell.co.uk) has passed £500 which was our target and the golfers have collected a lot on their sponsorship forms.
“We are over the moon with what we have raised so far.”
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Weather for Northumberland
Tuesday 18 June 2013
Temperature: 11 C to 15 C
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