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Endurance golf to support Evie’s rare condtion

The golfers and caddies after the challenge with Evie Campbell.

The golfers and caddies after the challenge with Evie Campbell.

More than 1,700 holes of golf played, more than 8,000 shots and 103 lost balls – all to raise funds to support an Alnwick toddler with an extremely-rare blood condition.

The Gazette first reported on Evie Campbell in May 2012, when the then eight-month-old baby had already undergone five blood transfusions since she was diagnosed with Diamond-Blackfan anaemia (DBA) at the age of eight weeks.

The condition, caused by a failure in the bone marrow and characterised by an inability to produce red blood cells, affects only around 125 people in the UK and has no known cure.

Now almost three, Evie takes steroids every day to try to stimulate her bone marrow to produce red cells and still requires transfusions.

In the last year, she has been referred to St Mary’s Hospital in Paddington to a specialist DBA team, where she is now making regular trips, although she still has her blood checked fortnightly at the RVI.

The Evie Campbell Trust Fund has been set up to help with travel, accommodation and costs occurred with making these regular trips to London and it received a major boost at the weekend thanks to a 24-hour marathon involving golfers, including Evie’s dad Richie, at Alnmouth.

The group managed to overcome pain, tiredness and torrential rain, thunder and fog to play from 7pm on Friday until 7pm on Saturday.

Richie, Rebecca and Evie would like to thank Alnmouth Village Golf Club and its members; Sheriffs; Sir John Hall and Lady Mae Hall; HF Holidays in Alnmouth; William Hackett Chains; RC Roland in Amble; Morrisons; and all the donations they received on the day.

Plus all the golfers: Jonny Luke, Bubba Keenan, Steve Mckee, Andrew Stanton, Neil Aitchison, Michael Dawson, Stu Dawson, Jonny Blythe, Michael Conroy, Mark McQueen, the stand-in golfers and all the caddies for their support and the outstanding amount raised.

Around £2,000 was raised for the Evie Campbell Trust Fund to support her trips to London.

 

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